Archive for July, 2010

ETD…

Posted in Uncategorized on July 24, 2010 by squawky

So we finally have a date…. August 19.

A bit tight for the beginning of the semester, but good enough.  I’m sure I can take the first few weeks easy and even miss a few office hours/meetings if things get too crazy.  (Too crazy…. they’ll be crazy anyway, but there is a limit!)

Hit a small plateau over the last week or so (hence the lack of updates), partly due to meds – at some point, the body starts to reject the chemical changes we’re trying to impose on it – and partly due to something unknown.  The unknown bit is fatigue: I need a few too many naps nowadays (this presents an issue when I start dozing off in therapy….).  Starting to feel like that might be something we’re getting a hold off, too – but we’ll see.

Have a trip next week (first time out of the hospital!) to visit a therapeutic riding stable.  No riding, of course, but lots of horsey stuff.  It’s a start – and it’s definitely more exciting than going to the mall or the grocery store!

We’ve also put together a list of “goals to accomplish now” – tasks I need to be able to complete before I can go home.  Things that I still need a bit of help with now (getting in/out of the wheelchair, for example), and won’t be able to get help with later…  having the list is a bit intimidating, but it really nicely spells out where we need to be when that magic date starts to approach.

It’s still weird, looking around my room, to notice all these signs that refer to me in the third person (restrictions on movement, diet, etc.) – I know I saw these type of things as a kid (visiting Mom – a nurse – at work), but it’s a bit surreal to think they are referring to me now…

Am starting to think about those places I might want to go outside my house… and the random thoughts are sometimes a bit strange (I can’t recall having ever seen an accessible craps table  – wondering if such a thing exists), but mostly productive (will I have the energy to navigate the hills on campus for those essential paperwork trips, how to ask a hotel if by “handicap accessible” they mean “regular room with no stairs to get to it” or if they’ve made the necessary design changes, etc.).  Might be having some anxiety-related insomnia, or I might just be getting back to normal – this is something I’m keeping an eye on.

Hopefully we’ve killed the fatigue problems and I can update more often – cross fingers!

Rehab Update 1

Posted in Uncategorized on July 6, 2010 by squawky

Yes, creative title – will have to do better with that in the future.

Things are progressing well in rehab  – healing-wise, the staples are out and the nurses say the incision (all 28.5 cm of it) is healing neatly.  There may not even be much of a scar to tell stories about…

Rehab is tiring, though – 2.5 hours of therapy (weekdays) re-learning skills I know I took for granted… like how to sit without support (new muscles, new balance) and rolling over.  Lots of physics, actually – thinking about how body position affects weight-bearing, and how to change upper body position to help readjust weight in the lower.  I do find that I’m tired most of the day (and starting to feel some muscle strain), but the positive progress makes it worthwhile.   Keeping on track to be out of here in a few more weeks, though – the most important part.

Moderately worried that I have no appetite (and am not craving anything – scary!!) – but have to figure that comes back with time (and once I’m no longer on a pre-determined meal schedule).   Not worried, though, about the getting back to the real world part yet – scary, yes, but know there will be lots of help waiting.  My classes are already moved to appropriate classrooms (no lab tables at eye level), so back to work should go as smoothly as … well… the beginning of the fall semester should (4 wheel drive recommended, that is).  I just need to find a way to make that spiral staircase in my condo usable – I hate to lose it!

Trying to be positive, still – finding those frustrated/fearful thoughts in the dark now, realizing that the future will be difficult.  This is to be expected, of course (and healthy to release these feelings on occasion)… but trying to keep them to a minimum.  I always appreciated a challenge – as long as I can see the obstacles as challenges to overcome, I know I can find a way around/over/through them.

Still great to hear from everyone – I’m moderately more connected now, so watching Facebook updates (and feeling a little cooped up in here!) and keeping track of emails.  I know I owe some email replies… will get to those as I can!  Lots of visitors, too – again, the positive talk and the chance to chat are always welcome.  Will keep the updates coming as the news comes along!